Oct 18, 2010

Family... of all sorts

So you know by now it's Down syndrome awareness month. Most of my family and friends who read this blog know enough about Down syndrome by now... or we are lucky enough to be in this "club" together. I feel so blessed to be a part of such a beautiful family... and by that... I mean each and every family that I belong to. My family, my husbands family, my church family, my Down syndrome family.... oh how I would be so lost with out each one. (I'll warn you now... this post might not go anywhere.... my mind is racing today)
Today I am feeling all sorts of emotions...

I smile because I am happy - happy Justin chose to be a part of our family - happy simply because Justin is happy - happy because my family and friends adore him so much...
I laugh because I am proud - proud of each and every milestone - proud to be his Mom - proud of the family we've created...
I cry because I feel alone, scared, nervous, frustrated - I cry because I don't know what he wants or needs, so therefore I feel like I am failing him...
I find myself in a daze because I am thinking about our future - or I am simply trying to pick myself up from having "one of those days"...

So what this boils down to is...
We are MORE alike than different. You may or may not have a child with special needs, but we go through a lot of the same emotions. Being a part of a family is comforting. Most of the time that is what gets us through the day... each and every day.

I need people in my life that will smile, laugh with me (or at me for that matter... as long as I am in on the joke), cry with me... hey, you can even daze with me! (Dazing is best with a cold Diet Coke in hand!)

We're coming up on the 2 year mark of finding out Justin has Down syndrome. Oh boy was it scary. I cried... ask my Mom... I cried HARD. (even though I knew with all of my heart before the test that he had Down syndrome... it was difficult to hear.) I held Tyler, he held me. I tried to act strong, but I felt very weak. We both had to be strong for each other, for the girls. I couldn't sleep. I didn't know how or when to tell my girls. Would they be angry or embarrassed, or would they love him the same way the had been for the last 6 months? I was up all night doing research. My mind was racing...

I'll never forget the way I felt the next morning. What a sweet blessing we were given. It was a blessing I never thought I wanted... but a blessing Heavenly Father knew we needed.

I want to thank each one of you for being in my life. We ARE family... and I love you.
... and dear, sweet Justin... you are everything we always needed!

(picture was taken the day after we found out our sweet boy had extra special genes!)

16 comments:

Kim said...

Okay my eyes are totally teary and I got goosebumps while I read this. I am totally amazed by you. I think you are doing an super great job. I agree that we are more the same, I know I have felt a lot of the same emotions you have felt, just about different things. Being a parent is so scary at times and I know I feel inadequate soooo often. Just know that I think Justin is lucky to have you and to have been born into your family.

Kristin said...

Time flies! Happy to be part of your Ds family :)

my family said...

what a beautiful post i think being a parent in general is a very scary, emotional, fun, joyful and many other emotions all mixed in one.

How old was Justin when you found out he had Down Syndrome

kecia said...

LOVE this post! It is all so true! I still can't get over that he was 6 months old before you knew for sure...crazy! I love this picture though! Can't wait to see you thursday!

Jen said...

I love Brynn looking at him in that last pictures! So cute! You really have the cutest family! I'm going to come to the Halloween Carnival on the 26th and I'm bring my baby "Perry Potter"--I would love to see you guys there!!

Heidi's Heartland said...

Emily,

You are stronger then you think. I would like to be more like you when I grow up! LOL Your family is beautiful on the outside - but more importantly they are all beautiful on the inside, that is a direct effect of you being a WONDERFUL mother and Tyler being STRONG father and husband. I know that you feel the LORDS hand in your life as I feel Him in mine. We may not be able to understand all things now - but we can enjoy HIS love and blessing every day - When I see pictures of Justin I see the Lords Love in his eyes. You are doing a great Job.
Love, Aunt Heidi

Runningmama said...

What a great picture...what a beautifully perfect family!

I'm Mindy. said...

ohhh Emily...You are so amazing!! Thank you for this honest post. You said it perfectly, and dont we all feel this way! Thanks for blessing our lives.. love ya!

Derek, Kenzee and Gage said...

Loved this post. It is all said so well! I feel the same way and often have those same feelings. We love your family and are happy to be part of your Ds family as well! :)

Kristen's mom said...

Isn't it so true, Heavenly father knows what we need even when we have no idea.

Cheryl said...

Love this post.Love you and your sweet family.I'm so glad to know you because of a little something extra.I hope we are able to cheer,laugh and cry with each other as the years go by.

Meghann said...

This is a beautiful post! There is nothing I can add for you've said it all so well! Thanks for sharing!

Summer said...

I love this post! You said everything so perfectly. That picture is so cute of all your kids. Justin is such a darling boy! It will be fun to see you on Thursday!

Cathy said...

Ah...such a beautiful post, Emily! You are so blessed to have Justin. Thanks so much for sharing His Royal Cuteness with all of us...your family.

heather said...

I love this post and am so grateful for my Down syndrome family as well. Morgan has brought so many amazing people and friends into my life. Very well said my friend!

Catherine Just said...

I'm so glad I get to meet you and your son on tuesday!
Thanks for stopping by my blog to let me know you plan on being there. Looking forward to it. Your son is ADORABLE!